Always in Hope tells the story of the world’s “Rare Community” at a pivotal point in history. Never before has the opportunity existed to change and save the lives of so many.

The project explores this “Rare” experience from the point of view of the stakeholders themselves; From the individual patients, parents, caregivers and advocates who are striving to move the needle of progress for their specific disorder to the world’s most brilliant, forward-thinking researchers, innovators, technologists, scientists, inventors and entrepreneurs who are changing the game on a global scale.